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Scoliosis is hard, but it's a little less hard with Higgy Friends!
Higgy Friends is a division of Higgy Bears, a 501(c)(3) nonprofit organization that helps kids and teens with scoliosis.
Higgy Friends Groups are FUN groups, not "support groups" for kids and teens with scoliosis. They will be a way to meet other scoliosis families in your area. Scoliosis is a very isolating condition. A lot of kids do not know others going through the same thing. Higgy Friends will help facilitate the process of meeting others in your area in a structured way so that kids and teens can know that they are not alone. 💚
Activities may include things like getting ice cream, going bowling, going to the park, making blankets or cards for kids in your area or simply being kids and hanging out!
Meetings will be hosted by a local Higgy Family. The family will plan fun activities and get togethers for the kids and teens once a month so that they can all get to know each other. The family will also coordinate with local doctor's offices to share flyers and spread the word about their group.
Interested in joining a Higgy Friends Group? There are currently over 30 Higgy Friends groups. You can contact the group directly by email or complete the contact form below if you are interested in starting a group!
PLEASE COPY ME ON ANY EMAIL TO THE GROUP AT JESSICA@HIGGYFRIENDS.COM

Jessica and Addison
My name is Jessica and my daughter, Addison, and I run the Dallas Fort Worth Higgy Friends group. Addison was diagnosed with scoliosis when she was 9 and is 13. Addison started with nighttime only bracing, then to full time bracing, and just had spinal fusion surgery. We have had ups and downs in our scoliosis journey and want to make sure other kids know they are not alone. Being a Higgy Friends group leader has brought us so much joy watching the kids bond and giving the parents the support they need.
I am also the Higgy Friends Coordinator for all groups. 💚🐻💚You can email me at jessica@higgyfriends.com to join a group near you. Don’t see a group near you? No worries, I can help you get one started!

Holly and Imogene
higgyfriendsofcalgary@gmail.com
Hi! I’m Holly and this is my amazing daughter, Imogene.
Imogene was diagnosed with scoliosis when she was 5 years old, and now, at 9, she’s brave, creative, and full of determination, showing our family what courage truly looks like.
Scoliosis is a big word for the curve in her spine, but it doesn’t stop her from doing the things she loves—going to school, spending time with friends, swimming, and making crafts (especially with lots of slime!). Some days are harder than others, but she faces each one with a smile!
Her journey with scoliosis has taught us so much about resilience, hope, and the power of community. Like many families, we’ve had moments of uncertainty and worry, but we’ve also discovered strengths we never knew we had, along with the incredible support of others walking a similar path and the wonderful and super special Higgy Family! 🐻💚
Because even though every curve is different, we’re all in this together!

Callista and Evie
higgyfriendsofpasadena@gmail.com
Evie and her mom, Callista, are the hosts of the Pasadena group. Evie was diagnosed with idiopathic scoliosis in 2021 just before her 7th birthday. Her curves were at 36°/36° with 9° of rotation. She has been wearing an LA Brace (custom 3D) ever since. Her in-brace correction is currently at 0°/4° with 0° rotation. Her family is so proud of her progress and commitment to bracing. She doesn't let it slow her down!
Callista also has scoliosis. She was diagnosed at age 10, wore a Boston brace for about 1 year, and underwent spinal fusion at age 14. She is fused from T1-L4.

Erica and Willow
Hi! I’m Erica and my daughter Willow and I run the Bowie, Maryland Higgy Friends group. We both have scoliosis. Willow was diagnosed with an S curve at age 7 and started bracing at the age of 9 about 4 years ago. Every journey is different, but also has its similarities as well. It’s always nice to connect with other families and to remind them that they are not alone. We look forward to having fun and making memories! 💚💚💚

Stephanie and Penny
higgyfriendsofannarbor@gmail.com
My name is Stephanie, and my daughter is Penny. Together, we lead the Ann Arbor–area Higgy Friends group. Penny’s scoliosis was discovered this past April during a routine screening at her well-child visit, and an x-ray quickly confirmed the diagnosis. Shortly afterward, we immersed ourselves in the scoliosis community and found Higgy Bears. By coincidence, Penny received her brace the same week we attended Higgy Con--it was a wonderfully encouraging and affirming experience that helped us begin this journey on a positive note. We believe that peer support is one of the most important and meaningful resources for navigating scoliosis. We’re excited to help build a strong, connected scoliosis community here in the Ann Arbor area and to offer other families the same sense of support and belonging that has meant so much to us.

Destiny and Mia
higgyfriendsoflatimer@gmail.com
Hi! My name is Mia, and I’m 11 years old. I live with
Spondyloepiphyseal Dysplasia Congenita (SEDc), a rare
genetic condition that affects how my bones grow and
causes complications like scoliosis. I wear a scoliosis
brace every day and spend a lot of time managing
different parts of my health — but I’ve learned that being
brave doesn’t mean pretending things are easy. It means
finding purpose in the hard stuff.
When I got my first Higgy Bear, I didn’t realize how
much it would mean to me. It wasn’t just a stuffed bear —
it was comfort, friendship, and a reminder that there are
other kids like me out there. I felt seen. I felt understood.
My dream is to create a Higgy Friends group here in my
community — a place where kids with scoliosis can
connect, share, and support each other. No one should
have to face this alone.
Higgy Bears isn’t just about the bears — it’s about the
message behind them. Every bear tells a child, “You’re
not broken. You’re brave.” And that message can change
lives.

Courtney and Rowan
higgyfriendsoftupelo@gmail.com
My name is Courtney. Along with my daughter, Rowan, I run the Tupelo Higgy Friends group. Rowan was diagnosed with scoliosis shortly after turning 9. She began bracing for 18 hours a day, which we are still continuing.
I felt so lost when we first received Rowan’s diagnosis, but finding Higgy Bears helped me learn about scoliosis and how to advocate for my daughter. This experience inspired me to become a Higgy Friends group leader—to help other parents and to give Rowan the chance to meet kids who are going through the same things she is. It has really helped her to know that she’s not alone.

Kelly and June
higgyfriendsofcentralpa@gmail.com
My name is Kelly, and my daughter June and I head up the Central Pennsylvania Higgy Friends group. June was diagnosed with scoliosis in 2025 at the age of 10. We are excited to offer a welcoming group where kids and parents can feel supported and seen along the scoliosis journey.

Jenny and Amy
higgyfriendsofpittsburgh@gmail.com
I’m Jenny and my daughter Amy is 14. She has been bracing since she was 12. First, she was in a Rigo Cheneau brace (leopard print), and then she switched to a Whisper brace. Joining the Higgy Friends group and learning about Higgy Bears and Higgy Con was life changing for her and our whole family. Amy used to hide her brace under her clothes and hope people didn’t notice it. Meeting other Higgy friends helped her feel proud about her brace and her journey. She started wearing her brace so everyone could see it and she is happy to talk to anyone about scoliosis and bracing. We are thrilled to coordinate the Pittsburgh Higgy Friends group with the hope that we can help more kids feel comfortable, proud of themselves, and part of a community.




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